Allocate adequate resources to support Persons with Albinism – FWAs Chairman urges EKSG

Bernice Larryoboh




The Chairman of the Persons with Albinism Association [PWAs], Ekiti state, Oniya Johnson has pleaded with Ekiti State Government to allocate adequate resources for healthcare, education, and awareness programs for PWAs in the state.

This, according to him, can be realised by supporting existing initiatives, funding scholarships, providing job opportunities, and volunteering their time and expertise to raise awareness.

The chairman made this plea in a press conference held in Ado-Ekiti, the state capital, to commemorate 2023 International Albinism Awareness Day (IAAD).

According to him “Albinism is a genetic condition that affects the pigmentation of the skin, hair, and eyes, resulting in reduced melanin production. Unfortunately, this condition is often accompanied by social stigma, discrimination, and health-related issues, impeding the overall well-being and integration of PWAs into the society.

“PWAs frequently endure social ostracism and discrimination due to prevalent myths, misconceptions, and superstitions surrounding albinism. These negative attitudes contribute to exclusion, limited educational opportunities, and restricted social interactions, resulting in a sense of isolation and low self-esteem.

“Insufficient awareness about albinism contributes to the perpetuation of harmful stereotypes and discrimination. This lack of understanding extends to healthcare providers, educators, and even within families, leading to a disregard for the specific needs and challenges faced by PWAs.

“skin cancer is a deadly ailment that has be disturbing PWAs in the sub Saharan region of Africa due to the high intensity of the sun. The sun emits ultra Violet ray that cannot be withstood by the skin of PWAs due to low or lack of melanin. This skin cancer had claimed the lives of two of our great leaders in Ekiti Albinism Community.

“Truly the sun cannot be stopped from shining but there are diverse ways of preventing skin cancer but they are financially demanding. The demise of Late Pastor Alufa Ola, the former chairman of this association and Late Mrs Bola Salami is making the skin cancer a serious threat to the PWAs in Ekiti state. Being a Person with Albinism is not synonymous to developing skin cancer when proper measures are put in place.

“Governments, NGOs and individuals have crucial role to play in promoting inclusion and protecting the rights of individuals with albinism. Through implementation of legislation and policies, government needs to ensure that persons with albinism are safeguarded against discrimination, violence, and abuse in areas such as education, healthcare, employment, empowerment and social integration.

“Governments and healthcare providers must ensure that PWAs have access to specialized healthcare services, including regular eye examinations, dermatological care, and counseling to address the psychosocial impact of living with albinism. Provision of affordable or subsidized sunscreens and protective gear is crucial in reducing the risk of sun-related health complications.

“Governments should prioritize inclusive education by providing appropriate infrastructure, assistive technologies, and trained teachers who understand the unique needs of PWAs. Scholarships and financial aid programs can help alleviate the financial burden faced by PWAs pursuing higher education.

“Governments, NGOs, and businesses should work together to create inclusive employment policies and job opportunities for PWAs. Promoting entrepreneurship and vocational training programs tailored to the needs and abilities of PWAs can empower them to become self-reliant and contribute to their communities.”